Tuesday, June 9, 2009

what a nerve



This morning I went for an MRI or as the French say an IRM. I went because I have been in severe pain in my 'groin' for the last 9 weeks (in fact its been the last 30 years that this pain has come and gone.No pun intended) I just found out what I have suspected for a long long time,unlike all the American doctors I had seen over the years. American doctors who sent me on a wild goose chase of endless tests and dreadful treatments at a cost of thousands of dollars, only to arrive at the same undiagnosed place. So I decided to see a doctor here in Paris, and after listening to me explain my pain, with the aid of some beautiful colour coded drawings (pink for mild pain through to bright red for severe) He told me in less than 15 minutes that I have something called 'Pudendal Nerve Damage' but to have an MRI just to make sure. Well I did, and there it was on the scan, a little white line showing an extremely swollen and very painful nerve.
This nerve is situated in what has become known as 'My Groiny area' It is in fact situated where the leg joins 'your' or rather 'my' torso. Its symptoms are never the same from day to day or even hour to hour or even minute to minute, which makes it a lot of fun.....HERE is the layman's explanation of what the symptoms are...
Pudendal Neuropathy is frequently caused by a mechanical and/or inflammatory damage to the pudendal nerve. Such damage to the nerve can manifest in a variety of ways, such as vague pains, stabbing pains, burning sensations, pin pricking, numbness, twisting, cold sensations, pulling sensations, or the feeling of sitting on a lump. Pain is usually worse when sitting and less when standing, lying down, or sitting on a toilet seat.( GREAT!!! if I want to sit down it has to be on a toilet.Thats not going to look very nice in my office.) It gets better..PNE is a nerve condition causing pain for no apparent reason in the area served by the pudendal nerve. No one pain pattern dominates. Pain can be in just one area, several, or all. It can be on one side, two sides, or the middle. PNE can occur suddenly or develop over time without one realizing it. It can be caused by frequent prolonged sitting, cycling, repetitive movement , exercising with the legs or for no appearent reason.
I wish I could make all kinds of jokes about this (god knows I've tried) but the truth is my life will have to change completely (it already has). It means that I cant sit down for more than 10 minutes at a time (I've timed myself) without feeling like someone is inserting red hot coals inside me (without my permission). It means I will have to stand all day while I work on my computer editing my film or producing art. It means no cinema, no restaurants. I have no idea about flying (can I stand all the way back to miami for 9 hours?) Driving is a nightmare. Yes dear reader I'm a mess. I have a really nasty flu at the moment also (just as an added bonus).
Now if you think Im going to take this bad news sitting down you are WRONG! I Cant, I don't have a choice. In fact I haven't sat down for at least a week.Nothing would please me more than to take this news sitting down....It couldn't happen to a nicer guy. Could it?
I want to say I just cant 'stand' it, but the truth is I can. Because standing 'it' is all Im able to do. Standing 'it' is my only choice....
Am I feeling sorry for myself? you bet your sore pudendal nerve I am.I feel like going for a bike ride to forget all this, but yes you guessed it...No more bike rides.
Why am I telling you all this? Well they say misery loves company, the trouble is there is no company, they are all out sitting down somewhere. I'm standing room only.

P.S. The Doctor kept my drawings.He wanted me to sign them also.

8 comments:

Kim Marcille said...

Pip, why don't you sit on a donut cushion?? You know you must sit in order to Photoshop and iMovie and blog and whatnot.

Go get one immediately!

P.S., It's like you Photoshop'd out your sex life. HAHAHAHAHA!! :) xo

PHILIP BROOKER said...

I have one...they are no good...im designing and building my own cushion.......of course...do you remember I had this when I knew you darling....................sex? whats sex?

Anonymous said...

If the nerve is inflammated, try to buy pills of curcuma and pinapple powder from a natural food store or vitamin supplement store known for their incredible power of healing inflammation. Give it a try ...

Kim said...

http://www.pudendal.info/

"Good news. PNE can be treated through physical therapy, injection of steroids, and nerve decompression surgery. However, the earlier the treatment the better."

PHILIP BROOKER said...

hello Kim...Ive read about the injections etc, it doesn't cure, it just eases the pain.....I know this website, in fact I know them all off by heart...Its different for everyone..I need to start yoga, I need to really stretch..then deep tissue massege...then if all fails a shot gun...just kidding...I have had this before and hopefullllly it will go.......thank you for your research, You are not a nurse are you?

PHILIP BROOKER said...

I have tried curcuma...I will keep on taking it.......Thank you Dr S........

Neil said...

So sorry to hear about this, Philip. Pain is so wearing, and pain right at the root of your being is a very harsh thing to live with. Drugs are good, treatments are good, but in my experience the only true way to deal with something like this is to train yourself to look beyond it - easier to say than do, I know.

Aisha said...

Hello, i recently suffer from the same thing and it's a real pain in the ass! I am not taking any meds for it but it has been hard. Just a comment to remind you that you're not alone!